2026/1847

I am writing to request information under the Freedom of Information Act.

1. Please provide the number of patients recorded with a diagnosis of endometriosis within datasets available to the ICB, by financial year, for each of the last five financial years. If exact figures are not held, please provide any estimates available.
2. Please provide the number of patients recorded with a diagnosis of adenomyosis within datasets available to the ICB, by financial year, for each of the last five financial years. If exact figures are not held, please provide any estimates available.
3. Please provide the number of referrals for suspected endometriosis received within the ICB area, by financial year, for each of the last five financial years.
4. Please provide the average waiting time from referral to a first specialist gynaecology appointment for patients with suspected endometriosis during the most recent complete financial year. If available, please also provide data for the previous four financial years.
5. Please provide the average waiting time from referral to diagnostic laparoscopy for suspected endometriosis, where recorded. If this information is not held centrally, please provide any available waiting-time data relating to diagnostic investigations for suspected endometriosis.
6. Please provide the names of the specialist endometriosis centres and providers to which patients within the ICB area are routinely referred.
7. Please provide copies of any current care pathways, service specifications, policies or guidance documents relating to endometriosis.
8. Please provide details of any digital tools, mobile applications, websites or self-management resources that are currently recommended, commissioned or signposted by the ICB for patients with endometriosis or adenomyosis.
9. Please provide details of any funding, investment programmes, service development initiatives or allocated budgets specifically intended to improve endometriosis services during each of the last three financial years.
10. Please provide details of any funding, investment programmes, service development initiatives or allocated budgets specifically intended to improve adenomyosis services during each of the last three financial years.
11. Please provide copies of any service reviews, audits, needs assessments, gap analyses or evaluation reports relating to endometriosis or adenomyosis that have been undertaken or commissioned within the last five years.
12. Please provide the number of specialist endometriosis services currently commissioned by the ICB and the nature of those services.
13. Please provide copies of any documents, reports, meeting minutes, audits or analyses that identify factors contributing to delays in the diagnosis of endometriosis.
14. Please provide copies of any documents, reports, meeting minutes, audits or analyses relating to barriers to the timely diagnosis of endometriosis or adenomyosis.
15. Please provide copies of any referral templates, referral guidance documents, triage criteria or audits relating to referrals for suspected endometriosis.
16. Please provide copies of any standardised symptom assessment tools, questionnaires or patient-reported outcome measures used across commissioned services for patients with suspected endometriosis.

Please provide copies of any patient information forms, questionnaires, checklists or guidance documents that set out the information routinely requested from patients prior to their first specialist appointment for suspected endometriosis.

7. GM pathways are in development

For all remaining questions, this information is not held by NHS Greater Manchester; it will be necessary for you to contact the Provider Trusts commissioned in Greater Manchester for the information you seek.  To assist you, please find below links to their websites with information about how to make a Freedom of Information request.

Bolton NHS Foundation Trust – Freedom of information – Bolton NHS FT (boltonft.nhs.uk)

Northern Care Alliance NHS Foundation Trust – Freedom of Information Requests :: Northern Care Alliance

Manchester University NHS Foundation Trust – Freedom of Information – Manchester University NHS Foundation Trust (mft.nhs.uk)

Stockport NHS Foundation Trust – Freedom of information – Stockport NHS Foundation Trust

Tameside and Glossop Integrated Care NHS Foundation Trust – Freedom of Information Requests :: Tameside and Glossop Integrated Care (tamesideandglossopicft.nhs.uk)

Wrightington, Wigan and Leigh Teaching Hospitals NHS Foundation Trust – WWL Teaching Hospitals NHS Foundation Trust | FOI Disclosure Log