| Reference | FOI 2026/1766 |
|---|---|
| Description | Children's Continuing Care & Direct Payments Request |
| Date Requested | 18/05/2026 |
| Date Replied | 16/06/2026 |
| Category | Children and Young People & Maternity Services Transformation |
I would like to request information regarding Children’s Continuing Care cases and Direct Payments held by your ICB. If data for the FY 2025/26 is not yet available, please provide the latest year-to-date figures, as appropriate.
For the latest available period, could you please provide:
If possible, please provide the data in a spreadsheet or machine-readable format (e.g. CSV/XLSX).
If any part of this request requires clarification to ensure a response, I would appreciate your advice on how best to proceed.
Thank you for your support with this request. I am the parent of a child with complex medical needs and have personally managed my son’s Direct Payment Personal Health Budget for the past 10 years.
I now work with families, NHS teams and ICBs through Thrive Care Solutions to support the development of sustainable Direct Payment PHB models that give families greater control over care while helping reduce dependence on agency-led provision.
The information requested will help identify areas of good practice, variation and opportunities for improvement across England so I can better support families and NHS systems working through these challenges.
For the remaining locality packages of care, this totalled £11.391m