In light of the Health and Care Act 2022 and the statutory responsibility for Integrated Care Boards (ICB) to arrange for the provision of palliative care for your population, we request the following information regarding Palliative and End of Life Care (PEoLC) in general, and charitable hospice services in particular, within your system.
1. Do you have a palliative care and end of life care specific strategy or plan within your system?
Please choose one or more of the following and include the document link or attachment:
a. Yes, at ICB level
b. Yes, multiple at Place level
c. No
d. In development
e. Other – please specify what
2. Where are charitable hospice provider contracts held within your system?
Please only consider contracts with charitable hospices not NHS Trust provided hospices, but please include both adult and children’s hospices. Please choose one or more of the following:
a. Hospice contracts are held by the ICB
b. Hospice contracts are held by place-based ICB structures
c. Hospice contracts are sub-contracted by NHS Trusts or other providers
d. Other – please specify what
3. What types of contract do you use with charitable hospice providers?
Please choose one or more of the following:
a. NHS standard contract which is:
i. annual
ii. multi-year
iii. block funding
iv. bed or activity based funding
v. includes risk sharing around activity thresholds
b. grant or service level agreement, which is:
i. block funding
ii. bed or activity-based funding
c. fast-track continuing healthcare funding
d. continuing care funding (children)
e. other – please specify what
4. What was the total value of all these charitable hospice contracts for 2025-26?
a. for adult services
b. for children and young people’s services
5. Do you have a data dashboard across your system that includes specialist palliative care and end of life care?
Please choose one of the following:
a. data dashboard – specialist palliative care and end of life care included
b. data dashboard – specialist palliative care and end of life care not included (please state whether there are plans for expansion)
c. no data dashboard
d. other – please specify what
6. Has your system carried out a population needs assessment specifically including palliative and end of life care?
Please include the document link or attachment:
a. Yes
b. No
c. Other – please specify what
7. Does your system have a neighbourhood health pilot related to the end-of-life priority cohort? If yes, is your local specialist palliative care provider involved?
a. Yes – neighbourhood health pilot is related to the end of life priority cohort and specialist palliative care provider involved
b. Yes – neighbourhood health pilot is related to the end of life priority cohort but specialist palliative care provider not involved
c. No – neighbourhood health pilot is not related to end of life priority cohort
d. No – no neighbourhood health pilot in our system
8. Does your system have a single point of access (SPoA) to palliative and end of life care advice and support?
a. Yes for just health professionals to call
b. Yes for health professionals, patients and families to call
c. Yes for just patients and families to call
d. No
9. If you answered yes to question 8, does your single point of access (SPoA) provide access to all palliative and end of life care services in the area?
a. Yes , all services and it covers 100% of the system’s geography
b. Yes, all services but it does not cover 100% of the system’s geography
c. No but it covers 100% of the system’s geography
d. No and it does not cover 100% of the system’s geography