FOI2026/1911

Under the Freedom of Information Act 2000, I would like the following information about adult neurological care in residential and nursing homes. Please answer in the attached Excel spreadsheet and return it with your reply.

Which placements to include: Continuing Healthcare (fully funded), joint-funded, Funded Nursing Care where the ICB holds it, and Section 117. If some of this sits with councils or a mental health trust, please answer for what the ICB holds and note where the rest sits. Please answer from your CHC / commissioning system – there is no need to review individual case notes.

All questions relate to adults aged 18 to 64 funded by the ICB in long-term residential or nursing care.

Information requested

1. Please supply the name, job title, telephone number and email address of the commissioner with responsibility for neurological (or complex physical and cognitive care) placements for adults aged 18 to 64.
2. Please provide the total number of adults aged 18 to 64 with a neurological need funded by the ICB in long-term residential care, and separately in nursing care. Please give an end-of-year snapshot (at 31 March) for each of 2022/23, 2023/24, 2024/25 and 2025/26, and the most up-to-date figure available for 2026/27.
3. Please provide the number of new long-term placements made for adults aged 18 to 64 with a neurological need – residential and nursing separately. Please give the number during 2025/26 (year to 31 March 2026) and during 2026/27 to date.
4. Please provide the highest, lowest and average weekly rate paid for residential and nursing placements for adults aged 18 to 64 with a neurological need, for 2025/26 and 2026/27. If you use weekly rate bands, please give these too.
5. Please provide a list of providers of residential and nursing care used by the ICB to place adults aged 18 to 64 with a neurological need in long-term care. For each provider, please give the setting (residential or nursing), the number of service users, and the gross expenditure, using the latest month available (or financial year 2025/26 if not), and state the month used.
6. Does the ICB consider there is sufficient local residential and nursing provision to meet the needs of adults with neurological needs in the ICB area?

Definitions

By ‘neurological’ I mean: brain injury (acquired or traumatic), spinal injury, Parkinson’s disease, early-onset dementia, multiple sclerosis, motor neurone disease, Huntington’s disease, cerebral palsy, epilepsy, stroke, and neuro-rehabilitation. This is a guide, not an exhaustive list.

ICBs rarely record a neurological diagnosis. If you can identify these patients, please use the list above. If not, please report your ‘Physical Disability (adult)’ care group, or the nearest care group you hold. If you hold neither, please report all long-term Continuing Healthcare and Funded Nursing Care placements for adults aged 18 to 64 and state that a neurological split is not held. Please tell me in the spreadsheet which of these you used.

1. Katherine Sheerin, Chief Commissioning Officer, contact details – healthcarecommissioning@nhs.net

The Freedom of Information Act allows Public Authorities to decline to answer FOI requests when we estimate it would cost us more than £450 (equivalent to 18 hours, calculated at £25 per hour) to identify, locate, extract, and then provide the information that has been asked for.

NHS GM consists of the 10 Greater Manchester localities, Bolton, Bury, Heywood, Middleton and Rochdale, Manchester, Oldham, Salford, Stockport, Tameside, Trafford and Wigan (former Clinical Commissioning Groups), who currently all have their own processes/systems for recording their Continuing Healthcare (CHC) activity, and therefore, documents are held on various data bases.

Due to the volume and complexity of the data involved, it would require a disproportionate amount of time and resources to locate extract and collate the data, and therefore, on this occasion it is with regret NHS GM are not able to process this section of your request further.

On this basis, section 12(1) has been applied, because this would exceed the appropriate limit prescribed in the act.